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m WayneEvans1011 moved page User:WayneEvans1011/kicker33 to Long Covid Kids
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added infobox and some more info about coo's action against NHS
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{{Infobox organization
| name = Long Covid Kids
| full_name =
| logo = Long Covid Kids Charity logo.png
| founder = Sammie McFarland
| status = [[Charitable Organization]]
| website = {{url|https://www.longcovidkids.org}}
}}
'''Long Covid Kids''' is a [[United Kingdom|UK-based]] charity that advocates for families, children and young people affected by [[Long COVID|Long Covid]] and related illnesses.<ref name=":0">{{Cite news |date=2022-04-01 |title=Long Covid: Children affected take fight to Downing Street |url=https://www.bbc.com/news/uk-england-dorset-60955748 |access-date=2024-08-01 |language=en-GB}}</ref><ref name=":1">{{Cite web |title=“An absolute tsunami of need”: a conversation with Sammie McFarland, founder and CEO of Long COVID Kids |url=https://www.who.int/azerbaijan/news/item/12-09-2022-an-absolute-tsunami-of-need---a-conversation-with-sammie-mcfarland--founder-and-ceo-of-long-covid-kids |access-date=2024-08-01 |website=www.who.int |language=en}}</ref> Founded by Sammie McFarland, the organization aims to raise awareness, provide support, and advocate for research and policy changes in favour of those impacted by [[Long COVID|Long Covid]].<ref>{{Cite web |title=Devastating impact of Long COVID on children revealed in MDX exhibition {{!}} Middlesex University London |url=https://www.s.mdx.ac.uk/news/2023/04/long-COVID-research |access-date=2024-08-01 |website=www.s.mdx.ac.uk}}</ref><ref>{{Cite web |date=2023-10-19 |title=Campaigning mum's help for children with long Covid |url=https://www.dorsetecho.co.uk/news/23858294.weymouth-mother-develops-resource-kids-long-covid/ |access-date=2024-08-01 |website=Dorset Echo |language=en}}</ref><ref name=":2">{{Cite news |date=2021-02-05 |title=Long Covid kids: Mum's 'heartbreak' over children's illness |url=https://www.bbc.com/news/uk-england-tyne-55938399 |access-date=2024-08-01 |language=en-GB}}</ref>
'''Long Covid Kids''' is a [[United Kingdom|UK-based]] charity that advocates for families, children and young people affected by [[Long COVID|Long Covid]] and related illnesses.<ref name=":0">{{Cite news |date=2022-04-01 |title=Long Covid: Children affected take fight to Downing Street |url=https://www.bbc.com/news/uk-england-dorset-60955748 |access-date=2024-08-01 |language=en-GB}}</ref><ref name=":1">{{Cite web |title=“An absolute tsunami of need”: a conversation with Sammie McFarland, founder and CEO of Long COVID Kids |url=https://www.who.int/azerbaijan/news/item/12-09-2022-an-absolute-tsunami-of-need---a-conversation-with-sammie-mcfarland--founder-and-ceo-of-long-covid-kids |access-date=2024-08-01 |website=www.who.int |language=en}}</ref> Founded by Sammie McFarland, the organization aims to raise awareness, provide support, and advocate for research and policy changes in favour of those impacted by [[Long COVID|Long Covid]].<ref>{{Cite web |title=Devastating impact of Long COVID on children revealed in MDX exhibition {{!}} Middlesex University London |url=https://www.s.mdx.ac.uk/news/2023/04/long-COVID-research |access-date=2024-08-01 |website=www.s.mdx.ac.uk}}</ref><ref>{{Cite web |date=2023-10-19 |title=Campaigning mum's help for children with long Covid |url=https://www.dorsetecho.co.uk/news/23858294.weymouth-mother-develops-resource-kids-long-covid/ |access-date=2024-08-01 |website=Dorset Echo |language=en}}</ref><ref name=":2">{{Cite news |date=2021-02-05 |title=Long Covid kids: Mum's 'heartbreak' over children's illness |url=https://www.bbc.com/news/uk-england-tyne-55938399 |access-date=2024-08-01 |language=en-GB}}</ref>


== Background ==
== Background ==
The [[Charitable organization|charity]] was established in response to the growing number of children experiencing prolonged symptoms following a [[COVID-19|COVID-19 infection]].<ref name=":3">{{Cite web |title=In the shadow of long Covid |url=https://www.churchtimes.co.uk/articles/2023/9-june/features/features/in-the-shadow-of-long-covid |access-date=2024-08-01 |website=www.churchtimes.co.uk}}</ref> Sammie McFarland founded the charity with the support of a team of volunteers after her own daughter’s struggle with [[Long COVID|Long Covid]].<ref name=":1" /><ref name=":3" /><ref>{{Cite web |title=Life as a young person with long COVID: “You go through so many phases of up and down, it’s like being on a rollercoaster forever” |url=https://www.who.int/azerbaijan/news/item/30-08-2022-life-as-a-young-person-with-long-covid---you-go-through-so-many-phases-of-up-and-down--it-s-like-being-on-a-rollercoaster-forever |access-date=2024-08-01 |website=www.who.int |language=en}}</ref>
The [[Charitable organization|charity]] was established in response to the growing number of children experiencing prolonged symptoms following a [[COVID-19|COVID-19 infection]].<ref name=":3">{{Cite web |title=In the shadow of long Covid |url=https://www.churchtimes.co.uk/articles/2023/9-june/features/features/in-the-shadow-of-long-covid |access-date=2024-08-01 |website=www.churchtimes.co.uk}}</ref> Sammie McFarland founded the charity with the support of a team of volunteers after her own daughter’s struggle with [[Long COVID|Long Covid]].<ref name=":1" /><ref name=":3" /><ref>{{Cite web |title=Life as a young person with long COVID: “You go through so many phases of up and down, it’s like being on a rollercoaster forever” |url=https://www.who.int/azerbaijan/news/item/30-08-2022-life-as-a-young-person-with-long-covid---you-go-through-so-many-phases-of-up-and-down--it-s-like-being-on-a-rollercoaster-forever |access-date=2024-08-01 |website=www.who.int |language=en}}</ref>

Helen Goss serves as the COO and Scotland Representative for the charity.<ref>{{Cite web |title=Aberdeenshire mum launches legal action against NHS Grampian over daughter's long COVID treatment |url=https://news.sky.com/story/aberdeenshire-mum-launches-legal-action-against-nhs-grampian-over-daughters-long-covid-treatment-13051507 |access-date=2024-08-06 |website=Sky News |language=en}}</ref> She took [[Complaint|legal action]] against the [[National Health Service|NHS]] for what she claimed was [[Medical malpractice|medical negligence]] towards her daughter suffering from [[Long COVID|long covid]].<ref>{{Cite news |date=2024-01-18 |title=Long Covid: NHS legal action launched by family of girl |url=https://www.bbc.com/news/uk-scotland-north-east-orkney-shetland-68017038 |access-date=2024-08-06 |language=en-GB}}</ref><ref>{{Cite news |date=2023-11-02 |title=Children with long Covid in Scotland 'dismissed and ignored' |url=https://www.bbc.com/news/uk-scotland-67296679 |access-date=2024-08-06 |language=en-GB}}</ref><ref>{{Cite web |last=Roberts |first=Nick Forbes, Lizzie |date=2024-08-06 |title=Information about Covid-linked condition deliberately suppressed, inquiry told |url=https://www.thetimes.com/uk/scotland/article/information-about-covid-linked-condition-deliberately-suppressed-inquiry-told-8rjnkwt86 |access-date=2024-08-06 |website=www.thetimes.com |language=en}}</ref>


== Activities ==
== Activities ==
The [[Charitable organization|charity]] raises awareness about the [[Signs and symptoms|symptoms]] and impact of [[Long COVID|Long Covid]] in children to aid early [[diagnosis]] and [[Treatment and management of COVID-19|intervention]].<ref name=":0" /> It also provides educational materials, onlline meet-ups, and signposting to [[Health professional|healthcare professionals]] and support to children, young people, and their families.<ref>{{Cite news |title=Scottish Children’s Futures Are At Risk as Long Covid Takes Hold |url=https://www.deadlinenews.co.uk/2023/11/17/scottish-childrens-futures-are-at-risk-as-long-covid-takes-hold/ |work=Deadlinenews.co.uk}}</ref>
The [[Charitable organization|charity]] raises awareness about the [[Signs and symptoms|symptoms]] and impact of [[Long COVID|Long Covid]] in children to aid early [[diagnosis]] and [[Treatment and management of COVID-19|intervention]].<ref name=":0" /><ref>{{Citation |last=Connor |first=Chloe |title=A Critical Analysis of UK Media Characterisations of Long Covid in Children and Young People |date=2024-04-15 |url=https://www.medrxiv.org/content/10.1101/2024.04.13.24305152v1 |access-date=2024-08-06 |language=en |doi=10.1101/2024.04.13.24305152 |last2=Kranert |first2=Michael |last3=Mckelvie |first3=Sara |last4=Clutterbuck |first4=Donna |last5=Mcfarland |first5=Sammie |last6=Alwan |first6=Nisreen A.}}</ref><ref name=":5">{{Cite web |title=ORCID |url=https://orcid.org/0009-0005-6549-9249 |access-date=2024-08-06 |website=orcid.org}}</ref> It also provides educational materials, onlline meet-ups, and signposting to [[Health professional|healthcare professionals]] and support to children, young people, and their families.<ref>{{Cite news |title=Scottish Children’s Futures Are At Risk as Long Covid Takes Hold |url=https://www.deadlinenews.co.uk/2023/11/17/scottish-childrens-futures-are-at-risk-as-long-covid-takes-hold/ |work=Deadlinenews.co.uk}}</ref><ref>{{Cite journal |last=Zapata |first=Tomas |last2=Gosling |first2=Justine |last3=McFarland |first3=Sammie |date=2024-07-25 |title=We can do better for young people with long covid |url=https://www.bmj.com/content/386/bmj.q1664 |journal=BMJ |language=en |volume=386 |pages=q1664 |doi=10.1136/bmj.q1664 |issn=1756-1833 |pmid=39053941}}</ref>


The charity aids the development of [[research]] through patient and public involvement and also advocates for an increase in [[funding]] for [[research]] to understand the long-term effects of [[Long COVID|Long Covid]] on [[Child|children]] and to develop effective treatments.<ref name=":2" /><ref name=":4">{{Cite web |title=Written evidence submitted by Long Covid Kids |url=https://committees.parliament.uk/writtenevidence/117840/pdf/ |website=committees.parliament.uk}}</ref>
The charity aids the development of [[research]] through patient and public involvement and also advocates for an increase in [[funding]] for [[research]] to understand the long-term effects of [[Long COVID|Long Covid]] on [[Child|children]] and to develop effective treatments.<ref name=":2" /><ref name=":4">{{Cite web |title=Written evidence submitted by Long Covid Kids |url=https://committees.parliament.uk/writtenevidence/117840/pdf/ |website=committees.parliament.uk}}</ref><ref name=":5" />


It also advocates for informative [[public health]] campaigns, including appropriate mitigations in [[School|schools]].<ref>{{Cite web |title=COVID On Air #11: Aiding The Young with Sammie Mcfarland |url=https://www.endcoronavirus.org/blog/covid-on-air-11 |access-date=2024-08-01 |website=EndCoronavirus.org |language=en-US}}</ref> The charity has supported the [[UK COVID-19 Inquiry|UK COVID inquiry]] and were core participants in Module 2.<ref>{{Cite web |title=INQ000280195 - Witness statement of Sammie McFarland on behalf of Long Covid Kids, dated 25/09/2023 UK Covid-19 Inquiry Archives |url=https://covid19.public-inquiry.uk/documents/inq000280195-witness-statement-of-sammie-mcfarland-on-behalf-of-long-covid-kids-dated-25-09-2023/ |access-date=2024-08-01 |website=UK Covid-19 Inquiry |language=en-GB}}</ref><ref name=":4" />
It also advocates for informative [[public health]] campaigns, including appropriate mitigations in [[School|schools]].<ref>{{Cite web |title=COVID On Air #11: Aiding The Young with Sammie Mcfarland |url=https://www.endcoronavirus.org/blog/covid-on-air-11 |access-date=2024-08-01 |website=EndCoronavirus.org |language=en-US}}</ref> The charity has supported the [[UK COVID-19 Inquiry|UK COVID inquiry]] and were core participants in Module 2.<ref>{{Cite web |title=INQ000280195 - Witness statement of Sammie McFarland on behalf of Long Covid Kids, dated 25/09/2023 UK Covid-19 Inquiry Archives |url=https://covid19.public-inquiry.uk/documents/inq000280195-witness-statement-of-sammie-mcfarland-on-behalf-of-long-covid-kids-dated-25-09-2023/ |access-date=2024-08-01 |website=UK Covid-19 Inquiry |language=en-GB}}</ref><ref name=":4" />

Revision as of 10:15, 6 August 2024

Long Covid Kids
FounderSammie McFarland
Legal statusCharitable Organization
Websitewww.longcovidkids.org

Long Covid Kids is a UK-based charity that advocates for families, children and young people affected by Long Covid and related illnesses.[1][2] Founded by Sammie McFarland, the organization aims to raise awareness, provide support, and advocate for research and policy changes in favour of those impacted by Long Covid.[3][4][5]

Background

The charity was established in response to the growing number of children experiencing prolonged symptoms following a COVID-19 infection.[6] Sammie McFarland founded the charity with the support of a team of volunteers after her own daughter’s struggle with Long Covid.[2][6][7]

Helen Goss serves as the COO and Scotland Representative for the charity.[8] She took legal action against the NHS for what she claimed was medical negligence towards her daughter suffering from long covid.[9][10][11]

Activities

The charity raises awareness about the symptoms and impact of Long Covid in children to aid early diagnosis and intervention.[1][12][13] It also provides educational materials, onlline meet-ups, and signposting to healthcare professionals and support to children, young people, and their families.[14][15]

The charity aids the development of research through patient and public involvement and also advocates for an increase in funding for research to understand the long-term effects of Long Covid on children and to develop effective treatments.[5][16][13]

It also advocates for informative public health campaigns, including appropriate mitigations in schools.[17] The charity has supported the UK COVID inquiry and were core participants in Module 2.[18][16]

References

  1. ^ a b "Long Covid: Children affected take fight to Downing Street". 2022-04-01. Retrieved 2024-08-01.
  2. ^ a b ""An absolute tsunami of need": a conversation with Sammie McFarland, founder and CEO of Long COVID Kids". www.who.int. Retrieved 2024-08-01.
  3. ^ "Devastating impact of Long COVID on children revealed in MDX exhibition | Middlesex University London". www.s.mdx.ac.uk. Retrieved 2024-08-01.
  4. ^ "Campaigning mum's help for children with long Covid". Dorset Echo. 2023-10-19. Retrieved 2024-08-01.
  5. ^ a b "Long Covid kids: Mum's 'heartbreak' over children's illness". 2021-02-05. Retrieved 2024-08-01.
  6. ^ a b "In the shadow of long Covid". www.churchtimes.co.uk. Retrieved 2024-08-01.
  7. ^ "Life as a young person with long COVID: "You go through so many phases of up and down, it's like being on a rollercoaster forever"". www.who.int. Retrieved 2024-08-01.
  8. ^ "Aberdeenshire mum launches legal action against NHS Grampian over daughter's long COVID treatment". Sky News. Retrieved 2024-08-06.
  9. ^ "Long Covid: NHS legal action launched by family of girl". 2024-01-18. Retrieved 2024-08-06.
  10. ^ "Children with long Covid in Scotland 'dismissed and ignored'". 2023-11-02. Retrieved 2024-08-06.
  11. ^ Roberts, Nick Forbes, Lizzie (2024-08-06). "Information about Covid-linked condition deliberately suppressed, inquiry told". www.thetimes.com. Retrieved 2024-08-06.{{cite web}}: CS1 maint: multiple names: authors list (link)
  12. ^ Connor, Chloe; Kranert, Michael; Mckelvie, Sara; Clutterbuck, Donna; Mcfarland, Sammie; Alwan, Nisreen A. (2024-04-15), A Critical Analysis of UK Media Characterisations of Long Covid in Children and Young People, doi:10.1101/2024.04.13.24305152, retrieved 2024-08-06
  13. ^ a b "ORCID". orcid.org. Retrieved 2024-08-06.
  14. ^ "Scottish Children's Futures Are At Risk as Long Covid Takes Hold". Deadlinenews.co.uk.
  15. ^ Zapata, Tomas; Gosling, Justine; McFarland, Sammie (2024-07-25). "We can do better for young people with long covid". BMJ. 386: q1664. doi:10.1136/bmj.q1664. ISSN 1756-1833. PMID 39053941.
  16. ^ a b "Written evidence submitted by Long Covid Kids". committees.parliament.uk.
  17. ^ "COVID On Air #11: Aiding The Young with Sammie Mcfarland". EndCoronavirus.org. Retrieved 2024-08-01.
  18. ^ "INQ000280195 - Witness statement of Sammie McFarland on behalf of Long Covid Kids, dated 25/09/2023 UK Covid-19 Inquiry Archives". UK Covid-19 Inquiry. Retrieved 2024-08-01.
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